Albuquerque family who lost son to ALS happy that challenge is raising awareness

Posted at: 08/20/2014 9:45 PM
Updated at: 08/20/2014 10:24 PM
By: Danielle Todesco, KOB Eyewitness News 4

It is cold, wet, and on fire right now online.  The Ice Bucket Challenge continues to spread across social media.  But there is a local woman, who has been directly impacted by the disease the challenge is raising money for, who only recently found out about it.

Michele and Mike Grange lost their son Pat to Amyotrophic lateral sclerosis (ALS) when he was just 29 years old.  Michele says she is not on Facebook, so she wasn't aware of the Ice Bucket Challenge or the fact that it's raised more than $30 million dollars nationally in just a three-week period.

The couple says Pat's main goal when he got diagnosed was to make a difference, and he already has.  He is reportedly the only documented soccer player with a head trauma connection to his ALS diagnosis.  Pat's parents say that is why they're so excited so much money has been raised to keep the research going.

"In dealing with ALS, money has always been an issue.  It never had much money to do the research that was necessary to make progress on this disease, and so hopefully this will do it," Mike Grange said.

Donors in New Mexico are encouraged to donate to the local ALS chapter.  The money still totals in with the national numbers, but the local donations will help supply medical equipment and support for New Mexico patients and their families. 

 If you would like to donate, here is the link to the local chapter's website.