Wis. Surgery Reduces Autism Related Screaming

Posted at: 09/27/2013 2:24 PM
Updated at: 09/27/2013 5:05 PM

MADISON, Wis. (AP) - A mother who couldn't find ways to quell her autistic son's incessant screaming said a surgery performed by a University of Wisconsin Health doctor finally helped.

Vicki Hanegraaf said her 16-year-old son Kade would scream louder than a lawn mower more than 1,000 times a day for more than three years. Kade's twin brother, Kyle, also has autism and was sensitive to the noise.

"It was absolutely horrific," Hanegraaf, of Appleton, said in a statement released by the hospital. "We couldn't go anywhere."

The family sought help from a behavioral specialist, psychiatrist and a neurologist, who diagnosed him with Tourette's syndrome and prescribed an anti-psychotic drug. But nothing worked.

Hanegraaf then found an article that suggested using Botox to paralyze the vocal cord, leading the family to the American Family Children's Hospital in Madison where Kade was treated with Botox. It partially worked, and then Dr. Seth Dailey, a UW Health surgeon and ear, nose and throat doctor, then suggested surgery.

Dailey separated the cartilage in Kade's vocal cords, creating a larger gap for air flow and limiting the sound power. Since the surgery in 2011, Kade has screamed 90 percent less often and at half the volume, according to his mother. The surgery is reversible.

Hanegraaf said the fact that her son could no longer produce the loud scream seemed to temper his obsession with making the noise. "He still has a full voice and still makes a lot of noises the way people with autism do, but we can handle him at a restaurant or in public now," she said.

Arthur Caplan, medical ethics chief at New York University's Langone Medical Center, said the case seems disturbing at first but "is ethically defensible."

"The core reason is it's reversible" and could benefit the boy by helping him interact with others, Caplan said. "This is freeing a young person with a terrible, dysfunctional inability to stop screaming."

Dailey, who has a child with autism, reported on Kade's surgery in the March edition of Journal of Voice. The surgeon said he wanted to get the word out that help could be available for families struggling with similar problems.


Information from: Wisconsin State Journal

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