Posted at: 04/24/2014 11:24 AM
Updated at: 04/25/2014 11:40 AM
At just seven-years-old, Amelia Weaver has been through a lot. She was diagnosed with a rare and catastrophic form of epilepsy called Dravet Syndrome that causes her to suffer 30 to 50 seizures a day.
Mom, Angie Weaver says Amelia's day usually starts with a seizure. This syndrome has had life-altering consequences for Amelia. She lost her speech around the age of four and has other developmental delays because of Dravet.
Friday, April 25 the Hibbing community will rally around the Weaver family to help raise money to offset medical expenses at a benefit. All proceeds from the event will go to help Amelia and her family, Josh and Angie Weaver and 3-year-old sister Penelope.
Tickets are sold out for Friday's benefit, but you can still help. Donate online through Facebook HERE or Click to donate via PayPal. You can also donate at the Amelia Weaver Fund at Security State Bank, 701 E. Howard St., Hibbing, MN 55746. (218) 263-8855
The Weaver family is fighting to give Amelia a better quality of life through medical marijuana. An uphill battle for Angie and Josh. Tune in to Eyewitness News, Monday May 5 to hear their full story.